The IDF SCID Initiative, comprised of community members with specialized interest and knowledge specific of SCID, is dedicated to education, awareness, and diagnosis the disease. I’d say that if I need to go out there wearing a disposable virus suit, or looking like an astronaut even, just to be able to move about and go to the office, I will. Click here for more information about newborn screening.Ī program of the Immune Deficiency Foundation, SCID Compass is a program designed to guide parents of infants diagnosed with severe combined immunodeficiency (SCID), people living with SCID, and the medical community through the journey of learning about this rare life-threatening medical disorder and finding support to navigate the lifelong health challenges. Cabrera Chairman Emeritus, PwC Philippines. All types of PI, not just SCID, stand to benefit from early diagnosis as research advances.

Additional SCID and Newborn Screening InformationĮarly identification of SCID can make possible life-saving intervention before infections occur. To make a gift in memory of David, and to continue the research to improve the lives of those #livingwithPI, please donate by clicking here. In her words, “David was a great blessing to our family and to the world.” Sadly in 1984, four months after receiving a bone marrow transfusion, David died from lymphoma-a cancer later determined to have been introduced into his system by the Epstein-Barr virus.Ĭarol Ann carries on David’s legacy today through her work with IDF as a long-time member of the Foundation’s Board of Trustees.Ĭarol Ann believes, and science has stated, that because of what was learned from David’s gallant life and death, many children with SCID have since been diagnosed early, received bone marrow transplants and now lead healthy lives. Photo Credit: Baylor College of Medicine Photo Archives

The boy in the plastic bubble